There are few visitors now.
Apart from immediate family, the phone calls to her have virtually
stopped. When anyone inquires it is almost by way of apology:
"I hate to ask."
It is difficult and uncomfortable to peer into this
disintegrating universe. It is not the image of my mother that anyone
wants to retain. It is not how she would want to be remembered.
Sitting
in her wheelchair, leaning slightly to her right, supported by a pillow
in the small of her back, it is hard to tell the depth of the problem.
Her hair has been neatly combed, makeup and lipstick applied. But come
closer, for there are many "tells". Her eyes are almost always closed
and she has no comprehension that even when they are open she is without
sight. The stereo is playing Sinatra, always Sinatra and always too
loud. It is only this noise that seems to penetrate the fog.
Her once immaculate apartment is definitely showing its
age. The dining room carpet has tape over the areas that have now grown
threadbare. The drawers in the kitchen are almost impossibly stuck. The
notes that resonate from the piano are decades out of tune. The deeply
stained carpet has been removed from the bedroom, the stories it could
report of the trials and tribulations within that room thankfully no
longer evident.
It is not neglect but the ravages of time that have
compromised my mother and her surroundings. All about her has been
swallowed up in this vortex. There is the distinct sense of desperation,
trying not to disappear into an ever growing hole.
Often she talks in unsolvable riddles to me. Her
word retrieval is fading fast and so her thoughts come out in a series
of non sequiturs.
Recently she has begun speaking Yiddish.
She lives mostly in an imaginary world
occupied principally by her parents and her grandmother. She is very
worried about their health. None are well. Her father appears a gentle
soul, her mother more the disciplinarian. She often is concerned that
she has to leave to tend to them.
When her Aunt Minny is mentioned, it is that "Tilly works too hard."
Minny spends her days at the family store, alongside my mom's parents.
There is a strong work ethic that permeates this place.
My father has long since been left out of
the conversation. A marriage of 34 years, marked only by one happiness
after another, is nowhere to be found. On the very rare occasions when
my dad surfaces, it is to discuss my mom's credit card habits. I never
knew this was an issue.
"Mom, I don't understand Yiddish so well. You'll have to translate
for me." On the bad days, nothing seems to penetrate the barrier she
has erected between the world she actually inhabits and the one her mind
has her residing in.
But on this occasion, she is able
to give me a brief English version of one sentence. I tell her that I
never learned Yiddish but that 50 years ago, for a moment in time, I
studied German in a general language class. I still recall counting from
one to ten. As I begin, she joins in on some of the numbers.
The trick is to try to find a way to bring
her to this room, to this time, to this person who is sitting next to
her. Blind, there is nothing tangible before her that anchors my mom
here. Her hearing, while sometimes acute enough to pick up asides spoken
to her caretaker, is often almost oblivious to the conversation that is
taking place within a few feet. It is always about trying to locate a
connection to her.
It is unfathomable that my mom was born while
World War I was still raging. Was a body ever intended to last this
long? How much information has been processed through that brain, how
many images have those eyes witnessed, how many sounds have had to be
interpreted?
The downstairs neighbor is on the
warpath. She finds my mom's screaming during the daily ritual of bathing
and cleaning an attack on her senses. When the caretaker asks my mom to
be a little more quiet, that she is getting complaints, the response
may well be for my mother to scream a little louder, a little longer. No
one, my mom seems to be saying, can tell her how to conduct herself.
There is still something, she is advising anyone and everyone within
earshot, that has not escaped her control.
In her reaction is she demonstrating that, in some corner
of her mind, all is still being properly processed? While it may not
translate into cogent conversation, maybe it is still happening.
Where is the line drawn where we know that enough is too much? At
what point can we wish for something different? Over the course of
watching this journey, I have asked myself that question countless
times. But I have not discovered an answer.
Despite all of this, it is not a place without joy. I know that my
mom is happy for my visits. When she asks, "where is Rob?" and the
answer is, "he is here, he is right next to you", there is an almost
audible sigh of relief and pleasure. Often when I get up to leave, she
announces, "isn't he wonderful?"
If I have
to spend my time counting from one to ten in German to capture her
attention, if I have to sing the same Frank Sinatra song over and over
to her, if I have to repeat stories day after day, none of that matters
as long as, for whatever brief moments there may be, she and I are
together.
On a related note, another post about my mother, "The Man in My Mother's Bedroom," is scheduled to appear in a future edition of "Chicken Soup for the Soul" to be published Spring 2014.